Adenomyosis Fighters

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For a Moment, Imagine the Pain

For the next few minutes, I ask you to put yourself in another person’s shoes. Just imagine.

Imagine waking up in the middle of the night to excruciating pain that comes in waves, first in your lower abdomen and then moving to your lower back. These waves of pain come every three to four minutes, and are similar to full stage labor pains or kidney stone pain.

Imagine not knowing the reason or cause of this pain.

Imagine that you have no way to control this pain. The doctors have given you all kinds of medications, but nothing works.

Imagine going through this pain for five to six hours during the attack…waves of intense pain every three to four minutes which then start to move down to the upper parts of your legs. You could swear you are giving birth.

Imagine standing at the bathroom sink in the middle of all this with sweat pouring off your face and horrible nausea due to the terrible waves of pain. You can’t stand up straight because the pain is so unbearable.

Imagine holding onto the sides of the bathroom sink as you try not to faint as yet another wave of pain hits you. You see stars, and you try to position yourself so that you won’t hit your head if you fall.

Imagine an intense wave of pain throughout your belly as you grab onto the toilet to vomit…multiple times.

Imagine lying on the bathroom floor in the fetal position as you cry out of frustration while you are forced to endure this nightmare.

Imagine having menstrual periods that last ten to fourteen days per month with spotting on the other days.

Imagine having so much blood loss that you soak a pad in an hour.

Imagine how tired you feel because of the chronic anemia.

Imagine that you pass blood clots that are as big as the palm of your hand.

Imagine that you have so much abdominal bloating that you look three to four months pregnant.

Now imagine that this happens to you at least once a month.

Imagine trying to get pregnant while enduring all of this, but it never happens. You never have children.

Imagine the anxiety that you feel because you never know when an attack will hit you. You make sure you are always close to a bathroom. You panic as you drive down the highway and start to feel pelvic pain.

Imagine going through this while trying to hold a full-time job. What will your boss or co-workers say when you take another sick day?

Imagine trying to be a parent while suffering from this uterine condition. You can’t take a sick day as a parent.

Imagine that you undergo numerous invasive tests only to be told that they can’t find the cause of your problems.

Imagine being told that you need to see a psychologist because of this problem, and you are put on antidepressant medication for your depression and anxiety.

Imagine your friends, acquaintances, and “experts” telling you that “it’s all in your head” because the doctors can’t find a cause of the pain.

Imagine going through multiple surgeries but the pain and heavy bleeding always return.

Imagine having an endometrial ablation and being told that this will certainly stop the bleeding. The bleeding returns 24 hours after surgery.

Imagine having a hysterectomy before finally obtaining a correct diagnosis…after seventeen years of unbearable physical, mental and emotional pain. It was adenomyosis.

Imagine a doctor telling you that he doesn’t know anything about adenomyosis. He tells you to “google it”.

Just imagine. Imagine the frustration. Imagine the pain. Imagine your quality of life during that time.

Imagine…

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